Racefor7 2022 hosted by Organization for Rare Diseases India (ORDI) sees heartwarming turnout in support of Rare Diseases. Racefor7 symbolically represents the 7000 known rare diseases, the estimated 70 million
Only 1 in 10 people with rare diseases receive targeted treatment in India. On Rare Diseases Day, the focus must be on awareness, better R&D, and making genetic carrier screening
“A disease may be Rare but hope should not be” – Rare to the Rescue” . Yes 80% of rare diseases are genetic but there is lack of awareness and
