Bengaluru: Prasanna Shirol, Executive Director and Co-founder, Organization for Rare Diseases India has received “Rare Champion of Hope -2019” award from #GlobalGenes (Global Genes is a non-profit 501(c)(3) corporation advocating for rare disease globally) recently in #2019GGSummit World’s Largest Gathering of #RareDisease Stakeholders in San Diego -California ,USA.( on Sept 20th.)
Nine Individuals and Organizations from Around the World have been recognized for their Positive Impact on the Rare Disease Community.Expressing happiness Prasanna B Shirol said “I received this award on behalf of 70 Million estimated Rare Disease Patients and Families in India.I thank everyone for support and encouragement in this RARE journey.”
The Summit is the world’s largest educational event for rare disease patients and advocates. Offering four specialized learning tracks and led by more than 100 rare disease experts, the event is an unparalleled experience for patients and champions of patients alike to equip themselves with knowledge for actionable strategies to accelerate change.
Over 100 individuals and organizations worldwide were nominated by their peers for the RARE Champion of Hope award for their notable efforts in rare disease advocacy, collaboration in research, science, medical care and treatment. From the extraordinary list of nominees, the awardees were chosen by an esteemed panel of rare disease experts.